I'm new here and am wonderiing if anyone has PD plus BB...


Posted by Jan Quist , May 05,2002,01:47   Archive
I have searched your archives and have not found any reference to it...and as you have probably guessed- my reason for asking is because I have been diagnosed as having "Atypical Parksinson's Disease with Dystonia." How lucky can one gal get, huh? Actually I AM feeling lucky because I am scheduled for a DBS (Deep Brain Stimulator) on May 21 and am looking forward to great relief from many of my Parkosonsian symptoms but was wonderineg if any dystonic symptoms would be cleared up also....such as toes crampingn and the old eyelids constantly clpsing! I do not have the spasms that many of you seem to be describing and I have tried Botox with only marginal success. (By the way my DBS will be Stn-sub-thalamic nucleus) - which I guess is NOT the sire for most Dystonia relief...oh well..I will take whatever relief I can get.) Anybody heard fo anything thatI am talking about?? Plus I sure would appreciatee any prayers on May 21 - I saw that beautiful thread about the healing prayer,,,
Thanks, Jan



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Re: I'm new here /PD and BEB

Re : I'm new here and am wonderiing if anyone has PD plus BB... --- Jan Quist
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), May 05,2002,07:02 Top of Thread Archive
There is another person on this board, at least one that i know of who has PD. Perhaps she will see this and be able to offer you some advice.Also there is someone who has had the type of surgery you are scheduled for. Godd Luck with this!



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Re: I'm new here/wonderiing if anyone has PD plus BB...

Re : I'm new here and am wonderiing if anyone has PD plus BB... --- Jan Quist
Posted by June in Toronto (June Floyd,June in Toronto), May 05,2002,08:22 Top of Thread Archive
Welcome to the bb Jan. I can't answer your questions, but I can offer you my prayers for May 21st. Have you tried posting on the Dystonia bb as they might understand more what you are going through (what is Stn-sub-thalamic nucleus)? God Bless you.

June in Toronto (beb/meige)




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Re: I'm new here/wonderiing if anyone has PD plus BB...

Re : Re: I'm new here/wonderiing if anyone has PD plus BB... --- June in Toronto
Posted by colleen , May 05,2002,18:38 Top of Thread Archive
Hi Jan, I also have PD & beb.I was diagnosed with beb first &
a year later pd. My Doctor said that pd could haved caused beb.
Maybe surgery will help both.How long with pd & beb?
I know a lady who was going to have surgery i will call her & find out
Good luck
Colleen in IL



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Re: I'm new here and am wonderiing if anyone has

Re : I'm new here and am wonderiing if anyone has PD plus BB... --- Jan Quist
Posted by Cynthia , May 06,2002,14:30 Top of Thread Archive
Welcome, Jan. You're on my prayer calendar for May 21. I wonder if doctors know they are prayed for as well as the patient.
Cynthia in IL praying for successful treatment for you



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