Re: Lovely smile |
I loved your smile, and thought it rather infectious and mischievous even. Thank you for sharing your family with us in the web site. It sounds as thught you have a very supportive family who sees your inner beauty coming through even on days when the scrunching doesn't allow you to be as "pretty" as you'd like.
The facial maneuvers we go through trying to get our eyes to behave does cause a definite ache. I know that after I have driven (and I only do short little jaunts) my whole face aches from the pressure of keeping my eyes open.
I'm glad you had the strength to push for the medical help you wnat. It is true, that making a decision and following through does relieve some of the stress and depression. You now have a plan!
Keep on keeping on! You're doing just fine.
Sally in North Idaho where snow flakes fell again today, didn't stay but floated around through the air! Poor Mother Nautre definitly needs some psychiatric help as she sure is confused these days!
Re: Lovely smile/P.S.
I have Botox injections every eight weeks, and am ready for them then. It seems to have worn off at about six weeks. The dosage I receive is 90-100 units total each time.
Re: Lovely smile
Thank you for the compliment on my smile, and the support.
I am realy afraid I will lose my face for the rest of my life. I didn't know until I read "I miss my face" that that is a common anquish in this condition, and not just vanity.
I want to put one of my favorite pictures of me , smiling widely, holding two grandchildren, on the picture part of this site.
Love and luck to all.
LaShelle in Lancaster, California.
--modified by S. LaShelle Fisher at Tue, May 07, 2002, 22:23:15
Re: Lovely smile
Hi LaShelle, your lovely photo of you and your two granddaughters is now in the "BB Family Album". It brought a smile to my face. Go check it out.
Shirley in Arkansas
Re: Lovely smile
Shirley thanks for the wonderful pictures.I just finishing looking at them& now i really feel like i belong to a great family.
Will be watching for more pictures.
Colleen in IL Where the rain is never ending.
More severe storms tonight.
Re:frequency of Botox/ La Shelle
i usually can go only 6 weeks between injections with a total of75 units. My injections have again (January of this year being the first time in quite awhile) lasted another 2 weeks. I don't know why, but I'll take it. I have them this morning.
Re: Re:frequency of Botox/ La Shelle
For me, I was diagnosed in Jan, and receive my first injections a week or so later. My eyes opened in 4 days but it only lasted for a week and then struggled the second week trying so hard to keep them opened then had not choice and they just closed again. My neurologist will only give the injections every 3-4 months so I had to wait until the end of March! It was the longest 3 months of my life and trying to perform at work each day. My second set was given Mar28th, again my eyes opened in 4 days and as of today, they are still open and I am driving! I am hoping and praying they stay this way until the end of June which will be the 3 month mark and my 3rd set can be give but more so because I would love need them to be open to see my daughter Nicole graduate from grade 8 on June 25th but I am thinking I may have to enjoy it while watching it on the camcorder a few days later. These are the things that frustrate me the most.
take care, and keep smiling
Botox/ length of effectiveness
My Botox has never lasted 3 months. I feel like I've lost a lot of it by 4-5 weeks. I can still work but not drive after that time period. After 8 weeks, I can no longer work or open my eyes most of the time.
Most doctors don't like to give Botox more often because they think you will build up an immunity to it. Up until this month, 100 units was the max given for beb/Meige but now it is 150. I have an appointment in 2 weeks. I hope he will give me more or closer together. This last 2 months have been the pits. My condition is still getting worse every month. I now have it in my jaw and throat but my eyes bother me the most.
It seems to wear off on a lot of people. Some are lucky and it lasts or they don't even need Botox. Others are worse off and it doesn't work at all. Ann Doyle
Re: Botox/ length of effectiveness
Your story sounds just like mine. My doctor injects me every 8 weeks luckily. At least I guess I'm lucky. I do worry about building up antibodies in the future but for now I have to be able to care for the girls and I can't do it if I wait 3 months. Mine spread to jaw and throat as well. Last summer was really bad. I choked alot when I would eat and ended up losing 3 lbs. (I only weighed 98 to begin with) But after a few months the throat spasm and the spasm at the back of my tongue eased up and now I can eat without choking but have to be very careful when I drink. The botox in my jaw muscles seems to help as well. I went for injections on Friday and he gave me a little more than the 100 units. We are going to gradually increase and see if I can't get a little better relief.