Re: Blepharospasm and ketogenic diet
Hi Fernando,A big welcome to you and your wife, and thanks for your kind words about this site. We try hard to keep it interesting and helpful to the needs of those who deal with the problems of blepharospasm ... and there certainly are plenty of those! I don't have answers to your questions, but am sure that someone will be along soon to respond to them. Please tell us more about yourself and your wife as you feel comfortable doing. It's fun to meet someone from Portugal! Drop in often and ask or comment on what interests you. Sally in North Idaho
Re: Blepharospasm and ketogenic diet
Sorry to be ignorant, but what is a ketogenic diet???
Re: Blepharospasm and ketogenic diet
Hello Christine,The ketogenic diet is a type of diet used in treatement of epilepsy, normally in child epilepsy. In the words of the Pediatric Neurology Division of the Stanford University School of Medicine, «the ketogenic diet is a special diet used to treat seizures. It was initially studied in the 1920's as a treatment option for those with intractable epilepsy. Since then, medications have replaced the diet, but there is now a resurgence of interest in the Ketogenic diet. The diet is high in fat, and low in carbohydrate and protein, which results in ketosis. In addition, fluids are limited, which helps contribute to the diet's success. This ketotic state exerts an anti-epileptic effect, though its precise mechanism of action is not completely understood.»
More information is available in http://www.stanford.edu/group/ketodiet/, and generally, on the world wide web, try to collect information searching, eg, in Google.
Fernando
Re: Blepharospasm and ketogenic diet
This sounds like the old "Dr. Atkins Diet" of several years ago. ???Sally in North Idaho, who tried that and thought it was great that you could eat salted peanuts, lots of meat and all that good stuff. But it didn't accomplish weight loss and caused other problems!
Re: Blepharospasm and ketogenic diet
There is a really lovely Movie about the Ketogenic diet. It's called "First do no harm" and stars meryl Streep. It's a true story, and it's a diet that cures some forms of epilepsy. Worth watching. I can see where Fernando is coming from, and if you watch the movie you'll see why! I can see that the diet could be worth a try...but with medical supervision I think.Love Claire
Re: Blepharospasm and ketogenic diet
I'd like to welcome you and your wife to the beb bb Fernando. You live in a beautiful country - we have only visited it once but we'd sure like to visit again sometime.I'm not at all familiar with a ketogenic diet, but read your explanation and would think that "lots of fat and low in liquids" might cause other problems with health! Anyway, its an interesting idea and others may know more about it. Let us know what you find out and keep posting about how your wife is doing - does she have Botox injections? Best wishes to you both. June in Toronto (beb/meige)
Re: Blepharospasm and ketogenic diet
People do lose weight very rapidly on it but ask a nutrienist if it is good for you or anyone else, not a DR because they know nothing about nutrition. Ann Doyle
Re: Blepharospasm and ketogenic diet
Congratulations to you for caring so much about your wife that you search the net for her. That's the sign of a Real Man. Sau hi to your wife. She must be someone special to have found you. What's her name? Ann Doyle from Kentucky, US . However, I do wear shoes, do not smoke a corn cob pipe or, live in a cabin but I have tasted White Ligtening. Once was enough. Almost put me in my grave. It's homemade gin and the smell is enough to make you drunk. Ann
Re: Blepharospasm and ketogenic diet
Hi and welcome to our bulletin board.
I've not heard of any information regarding this diet and Blepharospasm. You might contact the BEBRF by email and ask them if they have any information pertaining this diet. I would think that if your wife wanted to try it, you would need to contact a physician that was well-informed about this specific diet and follow their guidelines and be under their care to make sure that you got all the nutrients essential to a healthy diet. This would not be the type diet that you would want to tackle by yourself especially if there were other medical problems.
I did go to the Stanford University Medical Center Site and pulled out a few things to paste below that might let others know a little about this diet. See below:What is the ketogenic diet?
The ketogenic diet is a special diet used to treat seizures. It was initially studied in the 1920's as a treatment option for those with intractable epilepsy. Since then, medications have replaced the diet, but there is now a resurgence of interest in the Ketogenic diet. The diet is high in fat, and low in carbohydrate and protein, which results in ketosis. In addition, fluids are limited, which helps contribute to the diet's success. This ketotic state exerts an anti-epileptic effect, though its precise mechanism of action is not completely understood. Can the ketogenic diet be used in adults?
In general, the diet does not seem to be as effective in adults. Most studies have been restricted to children and a few adolescents. In these studies, people have pointed out that the diet does not seem to work as well in older children, and seems to work best in children aged 1-10 years. The reason is not clear, but some have felt that older adolescents and adults may not make or use ketones quite so well. There are currently no published adult studies. Can the ketogenic diet be used for conditions other than epilepsy?
So far, the only condition that the diet seems to be effective is epilepsy. It also seems to useful for treating seizures in a rare metabolic condition that begins in infancy (such as glucose transport protein defects). In this condition inadequate amounts of glucose (sugar) gets transported to the brain. There is very little information on the use of the diet in other conditions, such as multiple sclerosis, diabetes, obesity, etc. Shirley in Arkansas on a cool, cloudy day. --modified by Shirley-Arkansas-USA at Sun, Oct 20, 2002, 17:38:41
Re: Blepharospasm and ketogenic diet
Thanks for the info, Shirley, on the ketogenic diet -it was all new to me.June in Toronto
Re: Blepharospasm and ketogenic diet
Welcome to fernandez and wife. But any diet low in liquids sound pretty dangerous to me.
Re: Blepharospasm and ketogenic diet
Any diet that elinates one of the food groups is danderous and this one elimates or keeps below what is thought necessary for good nutrition starches, vegetables, fruits.
I know it works for quick weight loss.In the 70's almost everyone gave it a try and like most diets that elinate one of the food groups, you go off and gain your weight back.
I have a son, who when he gains weight goes on it until the weight is gone and then the circle for him begins,, off and on but he never gains too much so never has to stay on it for more than a few weeks. Ann
Re: Blepharospasm and ketogenic diet
welcome Frenando
I’m not a supporter of this diet! Read my story and you will understand why. In 1982 four years after his stroke, Alan experience a tremendous amount of seizures sometimes 3 times a day. At the advice of his DR. we tried the Ketogeic Diet with a combination of medication, this was all in New York. Needless to say I almost lost him. We ended up at Mass General Hospital in Boston, when he arrived the team of Drs. told me that he will not make it through the night (G-D decided who lives & would dies not DRS) as a result of this diet he only had 30% of both kidneys working.
Too much fat and protein without a sufficient amount of liquid to flush his kidneys. As an experiment they gave him Cytoxan, and a low protein diet which improved the situation, at the moment he is on large doses of Dilantin and Depakote, and thank G-D Alan did not have seizures for seven years.
Hang in there- Celia
Re: Blepharospasm and ketogenic diet
Celia, don't ever be afraid to use the word God. If that is who you believe in then by all means don't feel that you will offend people and it is softer by using G-D. Each person obviously has their own religious beliefs and some have none but that is there business and right also but that should not make you shy away from yours. ...AlanP.S. A believer
Re: Blepharospasm and ketogenic diet
I'll second that motion Alan. Why are people not afraid to use the word Satan but feel like it is wrong to mention God? It's strange, I posted a message about this and deleted it before it even got on.
I get my shots in 2 days and my face and head are in pain and everything I say doesn't sound right but you said it the way I would have liked to say it. Another believer. Ann Doyle
Re: Blepharospasm and ketogenic diet
I agree wholeheartedly with this. I am not a believer in God, but I do think that people have the right to say what they believe in without anyone decrying them for it, no matter what those beliefs are. People should not be made to feel sensitive, especially on here. If we find a comfort in something, be it God, swimming or meditation, then let us have it!
Pippa
Re: Blepharospasm and ketogenic diet
Thank you Pippa. I do too believe that I have a right to my opinion and can voice it but I don't think I should be preachy on this bb because IT WOULD TURN INTO A SHOUTING MATCH. Sometimes when I find someone who wants to share with me , I think that's the time for personal email and not the whole group. Ann Doyle
Re: Blepharospasm and ketogenic diet
Thank you all, for the opinions you gave about the possible relations BEB/ketogenic diet.
Yours, Fernando
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