Posted by: denise mckew ®
12/12/2002, 09:46:13
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Hi everyone,I went to Boston last Tuesday to see Dr. Tarsy again, because my facial spasms were returning full force. I wouldn't let him give me Botox, because I didn't want to go through 2 weeks of pain, just before Christmas. And more importantly, my spasms are not consistant, they seem to be set off by the weather and the right side of my face seems to drive the spasms.
This is the exact pattern of last year when I was told I had hemifacial spasm, then BEB. This time Dr Tarsy saw how the right side of my face drives the spasms, and how the pain effects me. I cringed when he tried to touch my face. He is at a loss and has refered me to Dr Hedges, because I am so atypical in my facial spasms with pain. I see Dr Hedges the last week of Jan.
So I'm still trying to find the correct diagnosis. Hope everyone is doing well,
Take care,
Denise
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