"Here I go, again!!"
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Posted by: Rita Molnar ®

01/10/2003, 23:05:35
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Hi Good Friends...

Today I'm in search of some pity...encouragement and a few prayers...if you wouldn't mind...

I'm scheduled on Monday for my second try at a blepharoplasty procedure (some of you might remember back in September when my surgery was aborted because of a blood pressure spike).. I've been on a beta blocker for several months now, so I expect that everything will work out ok this time.

If anyone is wondering...blepharoplasty is purely cosmetic, and doesn't offer a cure or even improvement to BEB. I know that, but I'm just hoping that removing some of that extra tissue around the eyes might make things a little better for me.

In the middle of all this, I'm still gathering papers and following the steps to have my dad accepted for Medicaid and admitted to a nursing home. Wouldn't you know--he "picks" this week to be at his worst--He keeps trying to leave the house to "go home", and I had to run down the street after him twice this week. I finally had to physically restrain him in a chair. After 5 straight days and nights of his hallucinations, I'm almost a basket case.

And I'm such a wimp about this BEB thing. It occurs to me that so many of you have problems that are so much greater than mine. I AM able to drive and carry on quite well so long as my Botox is working, and, I DO still manage to chuckle at myself when I bump into walls and crash my shopping carts the rest of the time. Maybe I should just accept this fate (and this face) and stop looking for anything more...It's just that I hate this thing so much! I really need to keep holding onto a hope that something out there, somewhere, might be able to help it--and I hope you all can understand that.

Anyway....if you guys wouldn't mind....I could use a few prayers that:

1) ...the surgery will go along smoothly this time.

2) ...the procedure will give me some of the relief I'm hoping for.

3) ...and that dad gets back on good behavior by Monday....

Thanks so very much...

Hugs from a tired, slightly apprehensive, miserable, blinking, squinting, Rita from New Jersey







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Evelyn ®

01/10/2003, 23:57:25
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No sooner said than done:) I hope surgery goes well for you and that everything goes easier for you in all areas of your life.

Today I got my prosthesis. I need to find a way to get a "before and after" picture to post with Shirley in the album. Now the droopy eye is open wider than the other eye. I think the prosthesis is a bit darker than my other eye, but anything is an improvement after having no iris or pupil at all after surgery:) Hubby is doing better with the Bell's Palsy. Now, wouldn't it be great if I could just feel good again?

Evelyn






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Re: Evelyn
Re: Re: "Here I go, again!!" -- Evelyn Top of Thread Archive
Posted by: June in Toronto ®

01/11/2003, 09:02:51
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Wishing you and your husband better days ahead, Evelyn.

Hugs June in Toronto







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Jeannie Day ®

01/11/2003, 00:16:02
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Rita, I hope your surgery goes well and your dad calms down until you complete the Medicaid process.

I had the blepharoplasty done at the same time my doctor did the limited myectomy in 1998 and the insurance paid for both. I don't think the blepharoplasty would have been paid for if separate. My doctor was able to justify the surgery.

You'll be remembered in my prayers.

from Jeannie who, although from Ohio, grew up in the Washington DC area and is familiar with New Jersey.







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Re: "Here I go, again!!"
Re: Re: "Here I go, again!!" -- Jeannie Day Top of Thread Archive
Posted by: Ann Doyle ®

01/11/2003, 08:59:05
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I'm not embarrassed at walking into walls and things. I sort of expect it except for one time in church I backed into a door really hard. I fell forward so hard that I wet my pants AND my wig went flying. I didn't think it was funny until just now. What a sight. My head really hurt but my glasses were off and I kept saying where's my wig. Put it on sideways and held my bible behind me and hurried to my car. Ann Doyle with wig @@@:-(

--modified by Ann Doyle at Sat, Jan 11, 2003, 09:34:44

--modified by Ann Doyle at Sat, Jan 11, 2003, 09:37:05






Modified by at Sat, Jan 11, 2003, 09:37:05

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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: June in Toronto ®

01/11/2003, 09:08:42
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You do have your hands full right now, Rita, and I'm praying that everything works out for you and your Father. There's nothing wrong in `hating' this beb disease, just don't let the hate control your life. Carry on as best as possible, smelling the roses as you go, but keep a look out for extra help with medications, alternative treatments and possible `cures' along the way. We are not BEB and must not let it control our lives any more than we possibly can. God Bless you.

June in Toronto







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Delaine Inman ®

01/11/2003, 10:13:10
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Much love and empathy your way. Many many many hugs and prayers for inner strength & Peace and to get through anything. "YOU CAN DO IT." Whatever IT is. A friend gave me a calendar for Christmas and the month of Jan. says," I get up, I walk, I fall down, mean while, I keep dancing." Keep dancing.






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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Shirley-Arkansas-USA ®

01/11/2003, 10:36:28
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Hi Rita,

You know that I can relate to the "taking care of daddy" issue. I understand completely what you are going through right now. It sometimes seems like our own health issues have to be put on hold until we can take care of everybody else.

I know that I've mentioned before that we had my father evaluated at a hospital for his dementia problems. He was in a geriatric psychiatric portion of the hospital where they dealt specifically with his hallucinations and confusion. The right medication has made a big difference. One antipsychotic medication that he was taking for his hallucinations was actually making him much worse and with a change in that medication, the hallucinations pretty much went away and he is much more manageable, now. It was a temporary hospitalization and gave us the time to see what the best plan would be for his ongoing care. The staff helped us tremendously. A registered nurse came out to our home to evaluate daddy for the program and talk with us and we took him in that same day.

It is just a thought for another option that you have that would buy you a little time in the medicaid/nursing home process. I believe that if there has been a recent hospitalization, medicare will then cover up to 30 days of a nursing home care(physical therapy may be required).

My dad has been getting progressively worse physically and I thought that "his time had come" a couple of days ago but he is still hanging in there. Stressful time.

I wish you the best of luck with your surgery on Monday. I hope that all goes well this time.

Shirley in Arkansas







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: ClaireW ®

01/11/2003, 11:04:51
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Love, thoughts and prayers...especially that the surgery will go smoothly and that you will have an uneventful and peaceful time during your recovery.

Hugs

Claire, macclesfield Uk







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Dee in OR ®

01/11/2003, 11:34:26
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Dear Rita,

Boy, you sure have a plateful right now! I'm thinking of you and sending warm thoughts your way. You're in my heart....

Cheers,

DeeOR







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Christel-California ®

01/11/2003, 13:06:41
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Rita, I would like to add my prayers and best wishes as well, for a sucessful surgery and particularly the hoped for results. I hope your Dad cooperates, though he hardly has contol over it. I can barely imagine what you are going through with him, having left my county of origin at an early age, I was never faced with taking care of aging parents. Neither one of my parents was suffering from dementia, my Dad died at home and my mother in a nursing home. I saw her a month before she passed away, now almost 16 years ago, and to this day I still see her eyes following me, when I left her room for the last time.

Hope all goes well for you and a speedy recovery.

Hugs,

Christel in Ca.







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: Joanne Matuzas ®

01/12/2003, 00:39:01
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Oh, Rita, I can understand your uneasiness after the last surgery

mishap and I pray you'll have a smooth, successful surgery this time.

Also, for patience, strength, etc. for your caregiving. I stand in awe of you, Shirley and all those who are offering those services to their parents. God Bless you all. Joanne M. San Diego, CA







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Re: "Here I go, again!!"
Re: "Here I go, again!!" -- Rita Molnar Top of Thread Archive
Posted by: joyce whitt/NC ®

01/13/2003, 10:30:00
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Rita, I am back in sunny AZ. and wanted to read the messages before I posted about my own surgery. Please know that I will be praying for you and wish you the best of luck. I was showing my cousin Marie all the responses that everyone gave when someone posed about their own particular situation and the encourageing responses that everyone gave. I told her that theses were my friends and we all have this disorder in common and that automatically created a sense of family.

Joyce from NC who is in sunny AZ.







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