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Posted by: cherrybrandy ® 07/09/2007, 10:59:25 |
hi folks had first shots fortnight ago and consultant noticed that under my eyebrows the skin sorta goes down more so she put two more in each to top of brows.question is how long does it take for brows to undroop? will that be when i know ive gotta have next shots?when eyes go crazy again? isit a gradual thing to notice when botox starts to wear off or suddenly do you wake up back to sq 1 so to speak..regardscb |
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Posted by: judith k ® 07/09/2007, 14:01:07 |
Not sure whether you are talking about your usual symptoms or ptosis?
I think people have said they've been all over the map with this one...if you have BEB (not apraxia) I don't see why a side effect of ptosis would tell you when to have the next set of shots. or what underbrow (as opposed to eyelid?) means. can you see the pupil equally on each eye? for me, on the couple of occasions I've had eyelid (or maybe it's eyebrow too, now sure of that part) droopiness, it has gone away within 2 weeks. once (maybe the lst time I had botox) it didn't manifest till after the first 8 or 10 days. Judith K |
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Posted by: kathy in australia ® 07/10/2007, 06:23:30 |
Hi CB, I have seen photos of myself just prior to getting injections where the excess skin, above my eyelid and below my brow, actually sits on my eyelid. It seems to push my eyes into a squint from the weight of it. Interesting that it comes and goes - I haven't tracked it to the Botox cycle. I did ask the Doc if it should be removed and he advised against it as the potential problem is that you may never shut your eyes properly. This can cause all sorts of other problems. It is something I will consider as I get older and the problem increases. I have a glamorous Aunt who has had the excess removed for cosmetic reasons and she has no side effects - my mum, who is very down to earth, just accepts it as part of getting older. I don't think it is part of BEB - but then, who knows?!?!? Let me know of the Botox above the brow works for you. Kathy |
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Posted by: cherrybrandy ® 07/11/2007, 14:24:51 |
Hi your doctor that you asked about removal of excess skin..does he know that with botox injections you never shut your eyes properly anyway?I am prescribed loads of drops as i can only close eyes 3 quarters down or thereabouts.how often had you had botox? i had first shots three weeks ago with topup shots a week later some in cheek as i have meiges as well..let me know and take care.cb |
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Posted by: kathy in australia ® 07/11/2007, 18:09:03 |
cb, I don't think it is true that you never shut your eyes properly after Botox - I have a problem for the few weeks after injections but am fine for the rest of the 3 months. Of course I am only guessing as I don't know what happens at night when I am asleep - I am just going on the fact that the dryness improves and my eyes settle into "somewhat normal" state. I have been getting Botox every 3 month since May 2004 for BEB and Meige. How did the shots in your cheeks go? When I had it done (once) I had problems with biting on my upper lip and I lost my smile totally - I looked a bit freaky (freakier than normal!?!). I now only get it high beside my nose, as per the photo in the BEB gallery. No problems since, though it took a long time to get my smile back. With the op to remove excess skin, I guess I am a bit scared - I have had so many problems, for so long and I have learnt to cope with most of them. I don't want to introduce a new set of problems and start the process all over again. To me, an operation is the last desperate measure and I am just not there yet. Perhaps as I get older (I am 42) and nature and gravity take their course, and my condition worsened, I would consider it. Kathy |
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Posted by: cherrybrandy ® 07/12/2007, 06:45:24 |
hi kathy the shots in cheek seem ok no drooping etc..how long have you been given botox for meiges? thats the next thing im having at another clinic?does that work as well a s botox..thanks for letting me know that the incomplete eye closure with botox only lasts a few weeks..im new to all this ynow..you too are young im 46..how do you manage with the meiges and blepharaspasms..im unable to work anymore?cb |
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Posted by: kathy in australia ® 07/13/2007, 22:01:12 |
Hi CB, I had my first Botox in May 2004. 2 weeks later I went back, very concerned, as I thought it had caused other symptoms - bunny nose and twitching around my jaw. Luckily, at the first session, the Doc had filmed me. When we reviewed the film, it showed I had the Meige all the time but I hadn't noticed it as my eyes were so bad! I then had a couple of extra shots beside my nose and beside my lips (kinda round the laugh lines). These shots caused problems with smiling and eating, so I didn't have them again. The ones beside the nose, and the meds, keep the meige under control. I had to give up work but am in a lucky position that I had private insurance so I still receive an income. It is a hassle though as the insurance company insists on Monthly forms being filled in by a GP. Occasionally I have to do an hour by hour update of my daily activities - a real pain, and it sends me into the doom and glooms - it is written evidence of how limited my life is (where does my time go?). I also have to attend specialist appointments, that are set up by the insurace company, seemingly on a whim - these appointments are always in Sydney which is a 1.5 hour drive (which I can't do) or a 2.5 hour train journey. They do things like book them for 9 or 10 in the morning. If it is school term, I physically cannot get the kids to school and make it there on time. If it is school holidays, I have to take the kids with me on the arduous train journey. Luckily, the last appointment (last week) my hubby was able to take the day off work and drive me there. I have explained the problem to them but they don't want to hear - I have told them I am willing to book the appointments with the specialist if they just give me the contact details. For some reason they wont do this. So we go through a huge effort of them booking it and me cancelling because I can't get there! I have even offered to fly up to ther offices in Queensland so they can see me in action :) Last weeks Specialist didn't even know why I was there. He asked a few questions, got that glazed look when I explained BEB and sent me on my way! Sorry this turned into a bit of a vent!! How do I manage? Day to day. Try to keep positive. Try to be thankful about the things that BEB has given me (family time) rather than what it has taken away (good, successful, fulfilling career, normal life). I stay out of sight when my face is in contortions, socialise as much as possible when everything is going well. Plan events around the Botox cycle - eg holidays booked 2 weeks after the shots, not 2 weeks before. One of the disappointing things is giving up my sports - I played A grade squash, basketball and golf. All require good sight and quick relexes which I no longer have, now my "sport" is going to the gym where I can run on a treadmill that has a safety rail and do classes that don't require too much fancy footwork. I look pretty bizarre running on the treadmill, indoors with my dark glasses on! Other positives - this thing wont kill us and it is not hereditary. I figure I could have scored a much worse disease. Kathy |
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Posted by: nelsonrenjaung ® 07/14/2007, 22:35:16 |
I have identical conditions as Kathy and didn't know what is Meige until this March. 10 years ago, I took botox several times on the smiling lines and around the lips which had exact same results as Kathy.I tried eye doctor 4 years ago after quited botox for many years who injected only around the eyelid which cause severe ptosis for more than a month. This March, I tried Botox again because my eyes finally closed most of time. Except around the eyes, Dr. J. injected on nose sides and middle of chin with high doses. My eyes closed due to ptosis for about 45 days and started to be functional only after 80 days. However, The symptom/spasm because of Meige totally stopped for almost 90 days. I went to another Dr. July 2, skipped eyelids area only on middle of eyebrow, nose sides as well as chin with limited doses. It turned out pretty nice, I can open my eyes as I wish now, spasm due to Meige all stopped. The second Dr. agreed that I don't have Blepharaspasm although my eyes closed all the time. This message is written for CB and Lee Ann, both of you have very similar conditions as I, I shall be happy to answer your questions.
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Posted by: Michael from UK and Aus ® 07/12/2007, 03:22:47 |
CB You sound as if you may have ptosis. As you are in the UK it is most likely that you had your injections above the eye brow. Whilst this is meant to protect against ptosis it does still happen as it did in my case. It has taken me 6 sets of injections over time to get it somwhere near right As I understand it in nearly all cases this does reverse. I have had 2 seperate ptosis repair surgery to remove skin and lift the eye lid. They have worked very well and I was pleased I had the surgery. I do not have botox anywhere near my eye lid now. Only well above the eye brow and along side the nose. Kathy, I have the same problem as you with the upper lip! Not fun trying to eat an apple or hot food. Mchael |
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