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Posted by: zls47 ® 04/18/2009, 15:53:25 |
I am curious if this happened anyone else. When I have my eyes examined by my optometrist, they dilate my eyes and give me drops to measure my eye pressure. I learned a few years ago that I would loose the effect of my botox. So I arranged my eye exams a week before my botox now. Have any of you experience this? Thank you Klara. Zoe in Texas Modified by zls47 at Sat, Apr 18, 2009, 15:54:14 |
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Posted by: Shirley Barr in New Mexico ® 04/18/2009, 18:08:53 |
I don't remember ever hearing this mentioned before. Not really sure why numbing drops and the drops used to dilate your pupils would have any effect on past botox injections. Might have just been a coincidence. I generally schedule yearly eye exams (for glaucoma and general eye health) at a time when my botox is wearing off as the botox does alter my vision to some degree. I've tried doing the eye exams when the botox is working it's best to control spasms but that isn't always the best time for me "seeing clearly". Shirley in New Mexico, USA after a day of snowfall and now a clear sunshiny day in the 60's. |
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Posted by: zls47 ® 04/18/2009, 22:34:51 |
Thanks for your email. |
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Posted by: lightwave ® 04/18/2009, 18:41:12 |
Zoe, During my eye exam, instead of dialating my eyes, my doctor takes a picture of my retinas with an Otomap. It is much better than having your eyes dialted and only costs about $30. You can view your retinas on computer and layers of the picture of your retina can be "peeled" back so the doctor can get a clearer view width-wise and depth-wise. The really great thing is that these pictures can be saved on your doctor's computer and comparisons can be made from year to year to find changes in your retina. The optic nerve can be clearly seen in these pictures. The really good part is that you don't leave the doctor's office with your eyes killing you because of increased light sensitivity. For more info on the Otomap, look it up on the internet. It takes a time or two to learn how to "pose" to get good retinal images, but once you get the hang of it, you rememeber it from year to year. Glynda in Houston, TX |
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Posted by: zls47 ® 04/18/2009, 22:31:06 |
Glynda, Thanks for the info about the Otomap. I will research and ask my Dr about it. Zoe |
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Posted by: Shirley Barr in New Mexico ® 04/19/2009, 10:52:04 |
Hi Glynda, The Otomap is a really nice thing. Some 10 plus years ago, the optometrist that diagnosed my Blepharospasm had all the latest technology and equipment in his office and was using this. I remember that insurance wouldn't pay for it and that it cost a bit more like you mentioned. It was certainly a more pleasant experience than having one's eyes dilated. I've been surprised that all eye doctors don't have this but then I figure it is also an expensive piece of equipment. We moved and it hasn't been available to us since. I remember my optometrist showing us the pictures on the computer screen. I remember asking my now Ophthalmologist about it when we first moved here and she didn't have much to say about it except for being aware of it. Shirley in New Mexico, USA |
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Posted by: pdb ® 04/18/2009, 20:28:32 |
Like Shirley, the reason I time my eye exams for late in the Botox cycle is to try to avoid the fuzziness that seems to come in from Botox. My reading capability on the eye chart varies widely with the timing of the session in the cycle. Cheers Peter |
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Posted by: zls47 ® 04/18/2009, 22:47:51 |
Thank you Peter. |
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Posted by: Claire from Canada ® 04/23/2009, 11:48:27 |
Hi, I read eveyone's posts on this topic, and I thought I'd get my 2 (Canadian!) cents in. Last week, I had my annual appointment with my surgeon who did my myectomy in 2004. I do get varying eyesight due to both Botox and Artane. He did tell me that without those 2 elements, my situation is 'artificial' so I should not get an eye exam on a 'good' day ('good' for lack of a better word). It makes sense to me, since my normal has become a combination of Botox and Artane. The only thing I will make sure of when I get my next eye exam, is that I have no gel or drops in my eyes just prior, since those 2 elements are not always there. My eyesight goes up and down, not to a huge degree, but still. What does anyone else think? Claire from Canada (where I just graduated from university last week, having worked on my degree through undiagnosed BEB, diagnosed BEB and Meige and Apraxia, surgery, meds, husband, daughter, career, mood swings, etc.... and where it is raining in Canada's lovely Capital City, but it will be sunny tomorrow) |
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Posted by: lightwave ® 04/23/2009, 13:43:45 |
I have read these posts with great interest because I have varying vision (as much as 2 diopters within 3 weeks time). It seems to be more a problem with close vision rather than distance vision. In fact, varying vision was one of my first symptoms when I started developing BEB. I went to the opthalmologist, got a prescription, got it filled and couldn't see through my new glasses. Went back to the opthal who documented six months of varying vision. He sent me to a neuro-opthal who did numerous eye to brain tests and didn't have a clue what was wrong (and did not recognize the BEB either). I DO NOT get Botox injections or take any medication that would cause varying vision. One of my doctors seems to think the varying vision is due to constant squeezing of my eyelids that changes the shape of my cornea. I just don't know what is correct but thought I would throw my experience in as food for thought. Glynda in Houston, TX |
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| CONGRATULATIONS CLAIRE | | ||
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Posted by: june in toronto ® 04/23/2009, 20:14:03 |
Well done Claire on graduating from university - "you can't keep a good gal down". You inspire us. I will be visiting 'Canada's lovely Capital City' shortly - to see friends and the tulip festival. June in Toronto where on Saturday it will 27degC and then it goes down to about 9degC (only in Canada EH?) |
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Posted by: judith k ® 04/23/2009, 21:19:00 |
Congratulations, Claire!
That's great, Judith K |
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Posted by: wltracy ® 04/24/2009, 02:53:28 |
Claire, I was officially dianosed with BEB by an eye specialist. I went into the appointment without spasms and had brought my laptop with clips to show him instead. The first thing he did was put drops in my eyes to dialate my pupils... needless to say I no longer needed to show him my clips. My Cervical Dystonia, Blepharospasm and facial spasm went into full force within about a minute. I dont know if everyone with BEB would go into such brutal spasm as I did, but be careful if they plan on dialating your pupils for the eye exam. Tracy
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Posted by: Shirley Barr in New Mexico ® 04/24/2009, 10:36:39 |
Tracy said:
"I dont know if everyone with BEB would go into such brutal spasm as I did, but be careful if they plan on dialating your pupils for the eye exam." The dilating drops have never caused eye spasms in my case. The drops can be uncomfortable and sting a bit which will cause my eyes to close but that is just a very temporary thing due to the stinging. Typically they put a numbing drop in first as they will also be doing a glaucoma (pressure) check. The numbing drops will, at times, cause people's BEB symptoms to disappear temporarily if there is an irritation factor going on contributing to the BEB. Shirley in New Mexico |
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Posted by: wltracy ® 04/24/2009, 11:13:13 |
I think the dialation of my pupils led to higher light sensitivity. This is what I believe sent me into spasm. |
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Posted by: zls47 ® 04/23/2009, 22:03:55 |
Would you believe this. Today I had my regular eye exam with dilation/pressure drops as usual and I did not have any issues. Go figure, why for 8 years I did and now I don't. Thanks for all of your posts. Zoe in Kyle, TX |
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Posted by: Claire from Canada ® 04/28/2009, 11:39:58 |
Hi Zoe, The unpredictability of this condition really frustrates me. It's not like other illnesses where you can get better or worse and you can explain it. It has happened that I am having a good couple of hours on a given day, and a colleague will say: 'wow, Claire, your eyes are great today'. Then later on the same day, I'll be spasming like there's no tomorrow, and the same colleague wonders why. When I mention these shifts to my neurologist, he always says: 'you know, we don't understand the phenomena completely, so we don't really know why this happens'. 'We' don't: I like that! I find it amusing. Better laugh than cry, I always say. Claire from Canada (where it was summer yesterday, in our beautiful Capital City of Ottawa, and today, we are back to Fall), up and down like BEB! |
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