tardive dyskenesia
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Posted by: Cynthia ®

12/11/2002, 21:52:24
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Does anyone out there have tardive dyskinesia along with BEB? Would a dystonia BB be a better place to look? Looking for information from someone who has it. Thanks.

Cynthia in IL

--modified by Cynthia at Wed, Dec 11, 2002, 21:53:16







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Re: anyone have tardive dyskinesia?
Re: tardive dyskenesia -- Cynthia Top of Thread Archive
Posted by: Sally - in - Idaho ®

12/11/2002, 22:13:38
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Hi Cynthia,

I do not have tardive dyskinesia, but think someone will reply to you soon. Our sister BB, the dystonia BB, can be reached by clicking on it at the bottom of our page. Lots of crossovers from different members, but also many who only post on one or the other.

Good luck.

Sally in North Idaho where it is raining tonight.







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Re: anyone have tardive dyskinesia?
Re: Re: anyone have tardive dyskinesia? -- Sally - in - Idaho Top of Thread Archive
Posted by: Cynthia ®

12/12/2002, 18:13:46
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Thank you so much, Sally. That will be very helpful.

Cynthia in IL where it was rather mild today.






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Re: Dee in Oregon - can you help Cynthia
Re: Re: anyone have tardive dyskinesia? -- Cynthia Top of Thread Archive
Posted by: Sally - in - Idaho ®

12/13/2002, 00:23:20
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Hi Dee,

Is this what you have? And can you direct Cynthia to support in this area? Thanks.

Sally in Idaho







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Re: Dee in Oregon - can you help Cynthia/SALLY
Re: Re: Dee in Oregon - can you help Cynthia -- Sally - in - Idaho Top of Thread Archive
Posted by: Dee in OR ®

12/13/2002, 01:04:27
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Sally,

Cynthia & I are old friends. I didn't realize she was the same Cynthia!! Everything is cool. Thanks....

DeeOR

--modified by Dee in OR at Fri, Dec 13, 2002, 01:06:12






Modified by at Fri, Dec 13, 2002, 01:06:12

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Re: Dee in Oregon - can you help Cynthia/SALLY
Re: Re: Dee in Oregon - can you help Cynthia/SALLY -- Dee in OR Top of Thread Archive
Posted by: Cynthia ®

12/13/2002, 08:24:07
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On this board all you have to do is ask! Thank you so much, gals! I'm researching TD for a new acquaintance who has it and hopefully will put him in touch with someone who can identify with all that he is going through. Dee has graciously offered to help. THANKS!

Cynthia in IL






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Re: Dee in Oregon - can you help Cynthia/SALLY
Re: Re: Dee in Oregon - can you help Cynthia/SALLY -- Cynthia Top of Thread Archive
Posted by: Kathy in Oregon ®

12/13/2002, 08:44:15
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Does TD hurt or cause pain?






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Re: Dee in Oregon - can you help Cynthia/SALLY
Re: Re: Dee in Oregon - can you help Cynthia/SALLY -- Kathy in Oregon Top of Thread Archive
Posted by: Cynthia ®

12/13/2002, 10:30:55
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From what I have read so far I don't think pain is as much of a problem as the involuntary spasms and movements. Help us out here, Dee. Thanks.

Cynthia in IL






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Re: anyone have tardive dyskinesia?
Re: tardive dyskenesia -- Cynthia Top of Thread Archive
Posted by: Dee in OR ®

12/12/2002, 01:41:16
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Hi Cynthia,

I have med induced tardive dystonia, including blephs. You can e-mail me if you want to.

DeeOR

Related link: http://www.tardivedystonia.org/index.html





Related link: http://www.tardivedystonia.org/index.html

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Re: anyone have tardive dyskinesia?
Re: tardive dyskenesia -- Cynthia Top of Thread Archive
Posted by: Marty Kiesewetter ®

12/19/2002, 16:09:12
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I also suffer from TD induced blepharospasm. I have tried about every drug regimen known and finally decided to go to SLC to see Dr Anderson for a myectomy. Maybe we can share experiences.






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Re: anyone have tardive dyskinesia?
Re: Re: anyone have tardive dyskinesia? -- Marty Kiesewetter Top of Thread Archive
Posted by: Cynthia ®

12/19/2002, 16:34:19
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Marty, glad you found us! Welcome!






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Re: anyone have tardive dyskinesia?
Re: tardive dyskenesia -- Cynthia Top of Thread Archive
Posted by: Marty Kiesewetter ®

12/19/2002, 17:02:13
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I have finally taken the plunge to get "on board". I have already learned a lot...and that others struggle with the same problem.






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Re: Welcome
Re: Re: anyone have tardive dyskinesia? -- Marty Kiesewetter Top of Thread Archive
Posted by: Sally - in - Idaho ®

12/19/2002, 17:06:12
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Welcome to this BB, Marty. Glad you have already found a few useful remarks. It's a pretty good place to come for help, support, to vent your frustrations, or just to have a laugh.

Come back often.

Sally in North Idaho







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Re: Welcome
Re: Re: Welcome -- Sally - in - Idaho Top of Thread Archive
Posted by: June in Toronto ®

12/19/2002, 18:11:49
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Another welcome to this bb, Marty. We look forward to hearing from you often.

June in Toronto (beb/meige 8 years)







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Re: Welcome
Re: Re: Welcome -- Sally - in - Idaho Top of Thread Archive
Posted by: IRENE SIEGER ®

12/20/2002, 10:22:24
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MARTY

WELCOME TO THE SUPPORT GROUP FOR BEB'S . THEY ARE ANGELS THEY HAVE HELPED ME OUT IN MANY WAYS . AND AM STILL LEARNING THINGS I DIDN'T KNOW ABOUT BEB. THEY ARE A TRUE SUPPORT GROUP. YOU ARE IN GOOD HANDS WITH

THE SUPPORT GROUP.

GOD BLESS YOU

HAPPY HOLIDAYS AND BEST WISHES

IRENE SIEGER







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Re: anyone have tardive dyskinesia?
Re: Re: anyone have tardive dyskinesia? -- Marty Kiesewetter Top of Thread Archive
Posted by: pippa from scotland ®

12/21/2002, 06:45:07
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Welcome from the Scottish "one", Marty. I have BEB for over a year now, and this site is a mine of information and support and a good laugh! Keep looking in, and you'll get as hooked on it as I am!

Please excuse my ignorance though...what is Tardive dyskinesia? I think I may have asked some time ago but with my memeory the way it is (especially with the Christmas bustle!) I seeem to have forgotten....

Pippa from Scotland where we have very settled weather of about 6 degrees and no hope of a white Christmas unfortunately. But I am sure Santa will appear anyway! (Maybe he has several changes of outfit, a really really warm one for Toronto with thermal underwear, to spare belts incase the elastic goes,...to bikini? swimming shorts ? style for OZ. My mind boggles at that one....







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Re: anyone have tardive dyskinesia?
Re: Re: anyone have tardive dyskinesia? -- pippa from scotland Top of Thread Archive
Posted by: joyce whitt/NC ®

12/22/2002, 10:45:13
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Pippa, I am with you, what is "Tardive dyskinesia". I have "senior Moments' and forget. I am sure I don't have it but would like to know so I can encourage people who have these different forms of dystonia.

Joyce in NC - who attended a wonderful service ar church, especially Sunday School. To me the Sunday school is the back bone of the church. There we get to know each other so much better.







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tardive dyskinesia?
Re: Re: anyone have tardive dyskinesia? -- pippa from scotland Top of Thread Archive
Posted by: Virginia ®

12/22/2002, 14:50:47
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Tardive dystonia and tardive dyskinesia are neurologic conditions resulting from taking certain drugs. For more information, use the link below and scroll down to "Drug Induced".

Related link: http://www.dystonia-foundation.org/defined/second.asp





Related link: http://www.dystonia-foundation.org/defined/second.asp

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