Posted by: June in Toronto ®
12/14/2002, 05:47:19
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I don't know of any complications like this with beb, Jeannie.My husband has Idiopathic Peripheral Neuropathy (PN) and he has symptoms you describe - pins and needle-type pain in his legs, now going into his fingers. He can feel a feather on his legs but does not know where his feet are and his balance is bad. It is a common disease (there are over 30 different types of PN) but under recognized. It is caused by damage (in the case of Idiopathic PN cases the cause is not known - many diabetics have PN) to the peripheral nerves that connect the central nervous system to the muscles, skin and internal organs. I wonder if your doctor has checked you for this? I do hope you get some answers and help soon. Take care, Jeannie. June inToronto
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Posted by: Jeannie Day ®
12/14/2002, 16:20:47
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June, I just posted a reply and then tried to edit it after I posted it and I lost it. So here goes again.Last week, I asked my doctor about neuropathy, but couldn't remember what type I was asking about. Now, I have written down the type you mentioned. It seems to me that the EMG I had on Tuesday would have picked that up, but both tests I had were normal. Like your husband, I have the "pins and needles" feeling, but unlike him, I don't have any feeling of not knowing my feet are there and it is not on my upper body. The pain and "pins and needles" sensation are not constant, but do occur several times an hour. Sometimes the feeling is greater on the left side. Also, my concern is about taking a muscle relaxant, because I want to know what is wrong right now-- not cover up the pain. Jeannie from Ohio which did not get any snow last night as predicted.
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Posted by: Kathy in Oregon ®
12/15/2002, 09:16:27
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Noone seems to be answering you on this. I take ativan in very small doses , which is a muscle relaxant. Doesn't the klonopin have muscle relaxant qualities as well?
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Posted by: Jeannie Day ®
12/15/2002, 19:23:36
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Kathy, I took Klonopin about 7 years ago and it didn't help with the spasms,but it affected my sleep pattern. I would go right to sleep, but all night it felt as though I were "awake" or I felt like I was aware of lying in bed all night. I don't know if this makes sense, but that's how I can describe how it affected me. I tried Ativan, but it didn't help. I am reading about Synthroid on the web and trying to see if any of my symptoms could be related to the dosage. This is not in lieu of getting another blood test tomorrow. I just want to have some information before I go tomorrow. Thanks for replying.
Jeannie
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Posted by: Ann Doyle ®
12/16/2002, 12:13:23
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I take klonopin . I asked my G.P. about it . My botox had worn off and I still had 4 weeks till the next Botox. I asked because I saw it mentioned so often on this site. He said that it should help lessen the spasms. It helps some for a short while. Better than nothing.
Maybe it wasn't this site . Could have been HFS site. Ann D
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Posted by: Ann Doyle ®
12/16/2002, 12:37:22
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I also remember reading that a side effect for some is depression. After taking it for 5 weeks , I could tell that I was getting depressed and found out again on a bb. that a lot of the people using klonopin also took zoloft for depression. It takes a few week to kick in. I've been on both of them for about 8 months now.
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Posted by: MaryNY ®
12/16/2002, 19:47:48
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Anne - I've been taking Klonopin (clonazepan) and Zoloft for several years. Mary
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Posted by: Shirley-Arkansas-USA ®
12/15/2002, 10:34:12
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Jeannie, many of us take Klonopin and it has muscle relaxant qualities to it. That is the reason that it helps along with reducing stress.
I wouldn't think that a muscle relaxer medication would make your BEB symptoms worse-it might even help. I don't blame you for wanting to know what is causing the problem before just "treating" the symptoms.Shirley in Arkansas
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Posted by: Virginia ®
12/15/2002, 18:21:37
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I took Baclofen for a while in addition to my Klonopin. We were hoping it would help the breathing problems. It didn't. But it didn't cause me any problems.I do understand about you (Jeannie) not wanting to mask your symptoms without knowing what is causing them. That is frustrating to me, too, when doctors do that. Virginia in gorgeous, sunny Alabama.
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Posted by: denise mckew ®
12/15/2002, 10:37:45
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Hi Jeannie,I take the muscle relaxant Flexeril as needed. It doesn't any adverse effect on my BEB, it actually seems to slow things down.
About the pins and needles, I get burning pain, pins and needles down my arms. It worsens with bad weather. On extreme days I can barely use my hands. I had an EMG and it came back normal. In my case, the muscles in my neck and shoulders can get so tight, that the ulna nerve gets entrapped, and irritated causing the pain etc. This is why I take the Flexeril. It does nothing for the pain, but when the muscles relax, the pain eventually goes away. When I flare up, I always plan on about 4 days before my arms and hands are okay again. You may want to ask your doctors about that possibility.
I'm not familiar with Scolactin, but Flexeril does not build up in your system. So it can be taken as needed...gives you a little more control over the drugs you take. I have been on and off it for almost 4 years now.
I hope this helps,
Take care,
Denise
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Posted by: Jeannie Day ®
12/15/2002, 19:36:29
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Thanks for the other replies. I have also taken Flexeril, but I don't remember why. It wasn't for the BEB, though.I have been taking Benadryl for over 4 years now and I often wonder if I will get long term adverse effects from it. Without it, I cannot talk or drive. I should say I can't talk to someone else. I probably could talk to myself, but if I admitted that, someone might wonder about me. Jeannie from Ohio who will never admit whether I talk to myself or not.
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Posted by: Kathy in Oregon ®
12/16/2002, 08:49:17
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I live alone and talk to myself out loud all the time. It IS called thinking out loud and does help sort out things in one's mind when verbalized. I also know a lot of other people who do this. Also my pets get pretty nervous if i don't talk to them. they don't like silence and i in NO way feel loony for doing this.
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Posted by: Kathy in Oregon ®
12/16/2002, 08:59:06
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Verbalizing things out loud is also cathartic and much better than internalizing everything. It ALSO enhances memory.
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Posted by: Ann Doyle ®
12/16/2002, 12:25:57
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I'm usually a quiet occassionally outloud talker. But once, I was watching Notre Dame(fan since 1937) by myself and let out a loud yell. All 3 dogs came running to see if I was alive. One even jumped on my chest to start CPR since a was in a semiprone position on the davenport.
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Posted by: Joanne Matuzas ®
12/16/2002, 14:35:27
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Jeannie, I have been taking benedryl for over a year now. Many folks
take it for long periods of time who are suffering with allergies.
As a result of my last discussion with a psychiatrist, I learned it can
cause short term memory loss which I seem to have now big time. Other than that, the effects can be somewhat individual. The med tends to lower my blood pressure somewhat and I suspect it also may be causing some of my weight loss although the doctor disagrees with that. I will admit I talk to myself...:<) Can't hurt and to tell you the truth, I'm at the point where I don't care if anyone wonders about
me.....:<) Joanne M. San Diego, CA
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Posted by: Kathy in Oregon ®
12/17/2002, 08:53:49
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Why the hell should anyone feel ashamed about this? As long as one is not muttering and incoherent. What do you suppose this BB is all about? Humans have a basic need to communicate with those who will understand.
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Posted by: Jeannie Day ®
12/17/2002, 21:52:15
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Kathy-- and who understands us better than ourselves? Looks like I brought everybody out of the woodwork who talks to themselves.RE: Benadryl. I haven't noticed a short term memory loss yet. I take 150 mg per day. From Jeannie who talks to herself after her 8 emotionally disabled students leave school in the afternoon. Actually, I love the class, but it is challenging.
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Posted by: Kathy in Oregon ®
12/18/2002, 09:43:30
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I'm sure and anyone who does such a caring job cannot just walk away each day emotionnally untouched!
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