Posted by: Jeannie Day ®
01/12/2003, 21:52:46
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The test used at the hospital to check nerve/muscle impulses was called EMG. It wasn't for my eyelids. It was for the lower extremities. It would shock me in the places the needle would be placed. I think if this would be used on the eyelids it would be painful.Jeannie from Ohio
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Posted by: ClaireW ®
01/13/2003, 01:27:55
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it is an EMG..I had small needles placed in the muscles around my eyes. it was uncomfortable...but no worse than Botox injections!
It showed that my eye muscles wouldn't relax.....surprise heh!
Most neurology depts would have one.
Claire
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Posted by: Debbie Campbell ®
01/13/2003, 08:28:37
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I've had this done as well, when I was diagnosed and before I receive botox treatment but I didn't have needles placed anywhere?? I was hooked up to the machine, and the reading would determine whether the spasms/muscles were too weak to keep my eye open or too strong. I dont't remember the name but I think this is the same procedure. My neurologist had it done in his office. He has someone come in specifically to do this testing.
Debbie from Canada
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Posted by: ClaireW ®
01/13/2003, 09:26:21
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No they don't have to use needles..they use needles to get a reading from a single fibre. I had my EMG to check for Myasthenia Gravis...but it really just highlighted BEB!
Claire
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Posted by: Irene Sieger ®
01/14/2003, 18:53:21
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Hi claire have they done this kind of testing to you.
And was it for the spasms or for another kind of testing that you there for. Needless to say those Botox injections do hurt but once they are over its over. I had my botox injections done on nov. 7 2002 and I have not seen good results has this ever happen to you. I have had more eye spasms that are very unconfortable . I'm still working at the School and at the mall but I'm thinking very seriously about early retirement. I want to get well and see my daughters graduate from High school and onto college. And I cry just to think why this had to happen to me but I pray to god that the research will find something to help us. I get frustrated at times and very upset. I have been to the message thearpist for my face ,neck, head , and the shoulders.But I'm not giving up if I have to seek additional help I plan to do so. The doctor I see doesn't tell much of anything she is a lady Dr or neurologist but kind of cold hearted. I see her like when you go to take your car for tune ups next. And she goes on . Take care and let me know about this new deal that the newsletter
is talking about.
Irene
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Posted by: magoo ®
01/14/2003, 20:00:44
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Hi Irene,
You are truely in all our prayers, we all understand what your going through. Don't give up dear, perhaps another Doctor, or at the very least another opinion.I've had this happen too, and it can be a terriable experience. Hang in there.
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Posted by: Irene Sieger ®
01/15/2003, 17:36:48
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Thanks Magoo for your encouraging words. That I must say
May the Good Lord Bless you always.
Irene
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Posted by: ClaireW ®
01/15/2003, 11:47:45
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Hi Irene...it sounds as though you have been having a frustrating time lately! I know the feeling..but don't our children just make it all worth while! I have two boys 13 and 16. I'm sure your girls bring you so much joy!
Yes..I sometimes feel like I'm a car in for servicing too....rusty old banger that I am!
I had the EMG to see if I had Mysathenia....it didn't but it suggested BEB as my eyes were spasming at the time, and it got me referred to the correct specialist.
Hope things go better for you soon!
Love to you,
Claire
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Posted by: Irene Sieger ®
01/15/2003, 17:47:58
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Claire:
I have two teenagers two daughters ages 17 & 18 and they are my pride and joy yes. I hope I'll be alot better for there graduation . And see them off to college. I'll do anything for them and I must say they have to help me out taking me to the dr appointments and work and I'm very greatful for that. I don't drive anymore I was very independed of myself and now I have to depend on others to help me get around .
I thank the good lord I have them if I didn't have them I'd be in worst conditions. Though my sisters and brothers and my mom who is in her 70's has the same disorder with BEB they all are very supportive. And I love them for that. And we see the same dr also. God Bless you to Claire
Irene
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Posted by: irene sieger ®
01/19/2003, 17:37:49
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Kathy
Hi this is Irene no not the entire family but MY mom and her twin sister
but we never knew that it was a disorder. Untill I got sick I meant that I entire family is very supportive. My mom is in her 70's and she has had BEB for about 10-12yrs. She also gets the injections, and My aunt she has never wanted to get this injections she just deals with it one day at a time. But it is very frustrated at times I had my injections done in Nov.7 2002 and I haven't seen good results this time and they injected 46 units like the last time. And I can't wait till Feb.7,2003 to see if there is going to be a differance. Has it ever happen to you that some of botox injections work better than others.
Let me ask is a movement disorder the same as BEB . I'm seeing a neurologist but there are times where there I feel the same I can't drive anymore not even close by .But my two daughters had to get them through drivers ed. to get there drivers license to get me around to dr's appointment. But they are only 17- 18 two girls teenagers. But they go drop me off at work at school.let me know anything about the movement disorder
God Bless you and take care
Irene
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Posted by: Kathy in Oregon ®
01/16/2003, 13:47:02
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Could these machines help with determining the right places to evntually give these injections if the new research things are successful?, maybe?
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Posted by: ClaireW ®
01/16/2003, 16:43:04
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I know that some neuros use these machines to determine correct Botox placement for Meige.
Claire
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Posted by: ClaireW ®
01/17/2003, 12:53:19
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Kathy...here is a bit I pasted in from a website...from a book edited by my Neuro! Technique of injection Injection into orolingual structures requires a detailed knowledge of the local anatomy and of management of potential complications of therapy. Injections into the pterygoids need electromyographic (EMG) guidance as they are not easily palpated. We also use EMG for the other jaw muscles to improve accuracy and ensure that we inject regions of active contraction. This is particularly important when performing follow-up injections. Gestures can help to target the toxin injection. They include opening the mouth when injecting the lateral pterygoid, and comparing opening the mouth vs protruding the tongue when injecting the digastric. See Chapter 4 for further guidance on the principles of EMG identification of dystonic muscles. hope you find that interesting
Claire --modified by ClaireW at Fri, Jan 17, 2003, 12:55:27
Modified by at Fri, Jan 17, 2003, 12:55:28
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Posted by: Kathy in Oregon ®
01/18/2003, 10:55:37
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well yes; going back to the top of this thread, these machines may be necessary if the research , at least in the injections involving the blood proteins turns out to be succcessful.
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Posted by: irene sieger ®
01/19/2003, 17:45:34
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Claire
Could the spasming be a sight effect after the Botox injections.
I don't know what to think any more. I only wish the research foundations would find something better that the Botox . I get discourage at times. Claire I just turned 51 on Jan. 18, and some-
times feel that what could trigger this disorder. I never knew that there was just an illneess.God Bless You
Take care
Irene
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