Question on remisssion
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Posted by: denise mckew ® 11/02/2003, 15:11:43 Author Profile Mail author

Hi everyone, I just read Dee's post and her doctor alluded to the fact that 10-15% of BEB patients go into remission. Has anyone every documented these cases? I'm just wondering if they can provide a common thread to relief from BEB? I'm also wondering if they had a primary or secondary BEB? Any insights? Thanks, Denise

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Re: Question on remisssion
Re: Question on remisssion -- denise mckew		Top of Thread	Archive

Posted by: Janetsh ® 11/05/2003, 03:07:25 Author Profile Mail author

early on when just my eyes were affected had some periods when it seemed to stop. Crossed the park one day with the kids one day and realised I was seeing the whole sky - in panoramic vision ie without blinks. Then almost as if I caught myself doing that I went back to blinking. Another time after a happy day in the park I ran out to see a friend who was dropping one of the kids back My daughter said look mummy your eyes are open - I looked all the way up and down the street when I went back in they stayed open too I was so excited I didn't even have a newspaper to read so I read the boys football magazine inside out but next day crash - as bad as ever.Another time I had been having some hypnotherapy and doing some work on concetration - I do creative writing - I worked fantastically for about a week as if there was a magnet under my desk - one day I was feeling so good it was going really well and my eyes were pretty good too and it lasted while I went to the shops on my bike - I looked up and down the road and they hardly blinked. A couple of times friends dragged me out dancing - to my favourite music - east African/Zaire and had such fun and it was nice and dark and I drank and was totally relaxed and my eyes were fantastic, they hardly closed at all and even though I was tired they were much better next day & I remember being able to read much better

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