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Posted by: kathy o ® 02/24/2003, 09:02:29 Author Profile Mail author |
I am hoping that you can give me some guidance. Since the summer I have had a twitch in my left eye which in now constant...it's almost like a quiver in the top and bottom of my eye. While I have not had any problems with the lid closing, I feel this since of pressure, not pain, above that eye and I now notice that it almost looks as if the skin above that eye is very different. I am 51 and have had dry eyes for several years. I saw my ophthalmolist about this back when it first started and he talked about botox but I thought this would just go away. My questions are does BEB ever occur in just one eye or is it always bilateral? And what were some of your experiences early on?? What's the right specialist to go to next?? I really appreciate your help and practical advice. All the best, Kathy O' |
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Re: new with some questions/WELCOME Re: new with some questions -- kathy o Top of Thread Archive
Posted by: June in Toronto ®
02/24/2003, 11:52:15
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Whatever condition you have I hope you are/have been addressing the dry eye problem with good non-preservative drops during the day and a gel at night, covering your eye(s) with a night mask to preserve the moisture.
The beb/meige that I've had for 8 years started during a stressful time in my life (we posters believe that stress can bring on, but not cause, this and other diseases) and it commenced with a lot of blinking and eye pulling, light sensitivity, and dryness. It took a couple of years to get it diagnosed (as most of us find) but it was finally confirmed by a neurologist - I now go to a movement disorder specialist/neurologist who has treated lots of dystonic patients and done a lot of botox injections. You need a similar specialist - one who knows what he's doing. It usually takes more than a few sets of botox injections before it is fine-tuned with the placement of the needles and the total amount of botox units to be used for you, before the treatment is as good as it can be.
Check back with any questions - we will do our best to answer them. Good luck
June in Toronto
Related link: http://www.blepharospasm.org/ > http://www.blepharospasm.org/
--modified by June in Toronto at Mon, Feb 24, 2003, 11:53:05
Related link: http://www.blepharospasm.org/ =-
Modified by at Mon, Feb 24, 2003, 11:53:05
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Re: new with some questions/WELCOME Re: Re: new with some questions/WELCOME -- June in Toronto Top of Thread Archive
Posted by: kathy o ®
02/24/2003, 12:57:31
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Thanks June!! I have been using a the drops and gel at night for the dry eyes as you suggested but haven't tried covering my eyes. Good suggestion.I am begginging to read about both beb and hemifascial spasm and I am going to ask for a referal to a nuerologist. I am down to one cup of coffee a day and the spasm in my eye is constant for several months now, so I feel it's time to find out what's going on with this. Thanks for you quick response. I'll read up. Kathy.
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Re: new with some questions/WELCOME Re: Re: new with some questions/WELCOME -- kathy o Top of Thread Archive
Posted by: Lynn Yarbrough ®
04/13/2003, 17:53:59
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These spasms are tricky rascals. Just when you need the most to show to your Dr. what's going on, they stop for a while. I suggest you find a friend with a Video camera and take some tape(s) of yourself when you're at your worst. Take them to your Doctor and he/she will be able to make a better diagnosis. It will also be helpful to you in understanding what's happening. After all, you can't see yourself blink, can you? Your eyes are closed!
Good luck in getting a good diagnosis, and be patient with yourself. These conditions are likely to stick around for a long time. In time it's possible to return to a normal life, as I have, but it may take a couple of years to find the right treatment.
Cheers,
--- Lynn
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Re: new with some questions Re: new with some questions -- kathy o Top of Thread Archive
Posted by: Christine ®
02/24/2003, 17:29:05
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My blepharospasm started with the odd twitch in my left eye, it became permanent over time. My right has eye never twitched, but it doesn't feel normal. I wrote my early experiences last week, they are now on page 6 under Christine, the main topic is under "New Member dsal".
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